Presley Update - March 26

Hi all,

Presley is doing very well. We have dragged her from doctor to doctor since she has come home and she is such a brave little girl. Today we visited the Shriner's Hospital to see about her dislocated hips. We arrived at 9:15am and left at 3:30pm. It was quite a long day. Presley was checked by Dr. H and she was sent for xrays of her hips as he didn't feel any dislocation in her hips. The xrays came back and her hips are not dislocated afterall. We asked then why is she walking like that and why does she appear to be in pain. He did not have a good bedside manner and was very busy with a room full of other patients. He wrote down a couple of words and said we should see physio therapy and they would help us with some exercises as her muscles are aspastic on her right side. He also indicated we should make an appointment with a pediatric neurologist. We already have a referral. He wants to see her back in a year.

We headed to physio but they were closed for lunch..so we headed to the caf for some tasty chicken and then headed back down. We finally were able to see someone at 2pm. A wonderful lady sat with us and told us what the doctor had written down and passed along to her. She indicated that she beleives Presley has cerebral palsy that has affected the right side of her body. She did a few games and observed Presley and indicated to us that she beleived it was a mild case and that from what she could see her hand was not bad but that her leg needed exercises as her muscles are tight. We sat and watched the therapist as she did the exercises on Presley's leg and foot. All through this she was laughing and giggling.

James and I are scouring the internet tonight and reading about CP and what it is and hopefully learn everything we can in the next months ahead...it is scary thinking about the potential big challenges our little girl might face in the future...but as I said to James as we drove out of the parking lot in the hospital...she is our daughter and we will do whatever it takes to help her ..

As soon as I got home I called the neurologist to make an appt and I was so lucky as I was told the wait for neurology is about a year...they had a cancellation and we have an appt for 11:15am tomorrow morning.

So hopefully tomorrow we will have more information and perhaps more answers. It has been a big day for us. I am pooped and need some sleep!

Until next time,

Karen