Hi all,
Well today is my last day and I am back to work on Monday. I will be taking more time with the kids and James mid July until the end of August and that will take up the remaining weeks we have for parental leave. The 8 weeks I have been off and since Presley has been home has passed so quickly. We have been very busy and seems like we didn't have one day to relax around the house and do nothing...I am not sure if that is possible anymore.
James and I have spent a lot of time with Presley and most days we kept Jaden home from daycare sothey could play together. Jaden still is having a few issues with losing her baby spot in our family but she is getting better. I know it takes awhile. I have seen it with Kennedy.
We have been busy with all the doctors, physio therapists, occupational therapist. pediatrician, neurologist, physchologists etc. Who knew there would be a team that huge to help with our angel. She has done amazingly well and we are madly in love with her. She is a very happy, spirited big girl. She is really starting to come out of her shell now and I see such a change in her. She is laughing a lot more and fits right in with our family. She is talking quite a bit and each day adds new words to her repetoire.
We see Dr Benaroch at the CP Clinic at the Shriner's at the beginning of June and we will see from that meeting if and what could be done to help Presley with her right leg. Her left leg from what the physio therapists are saying is very good. They feel the resistance only in her right one.
We are going to therapy (PT) every 2 weeks and OT they were very impressed with her and they only need to see her once in awhile to make sure she is progressing as she should.
Presley is also tongue tied and we had an appointment this week and they indicated with all she has been through since being home the surgery can wait. The oral surgeon indicated that it is not bad compared to others he has seen so he felt waiting 4 months would not make much of a difference. We want to give her the best chance with her language/speech so we want to proceed.
Presley will be starting daycare next week for 2 half days...James will spend the morning at daycare with her to make sure she is comfortable..I think daycare and all the kids will be great for her as from what we see at home Presley doesn't know how to play really. I don't think she was with many children her age.
I will post some new pics soon...and promise to update this site more often.
Hugs,
Karen
