Friday is here...and our update

Hi all,

Well today is Friday and James and Presley have been home almost a week. In a week things have changed quite a bit. Everyone is now back on our time zone which is a big bonus and Presley is really starting to warm up to life in our family. It is very nice to see. Her sisters Kennedy and Madison are madly in love with her and help her with anything she needs. With her hips this causes problems with her walking up and down stairs and they are still keen on helping her up and down and taking her to the bathroom or whatever else the Princess wants to do. Hmmm I wonder how long that will last. Colby is doing great with his little sister and is very good with her. Jagger will help her if he is needed to help and once in awhile I catch him showing her his favority gameboy or giving her a kiss on her head.

Just now she was in the livingroom and singing me some Chinese songs she knows. She was too cute.

I have not had much time for anything these days and have not taken many photos as most of the days from 8am-3pm we have been out at the hospital, pediatrician or where ever and the days have flown by. By the time the kids are in bed..I don't feel like doing very much. I will try and get some new pics this weekend as it is James birthday and we are having a BBQ tomorrow to celebrate his day.

So here is her latest update:
Thursday morning we headed to the Children's hospital for her appointment with Dr K for her eyes. He indicated that she had a micro strabismus in her eye and that with her bridge being wide it appears that her eyes turn in more than they really do. He checked to see if she needed glasses and he indicated he beleives she needs nothing and that he hopes that she will grow out of it as he has seen with other children. He wants to see her back in 6 months to see how she is coming along. So good news there!

Thursday afternoon we visited her new pediatrician, Dr K, who checked her all over. She gave me the list of the many blood tests to be done so we will work on that in a week or two. She indicated of course she needs to be checked by orthopedics and I advisd her the appointment was for Monday morning. She also gave us a referral for a neurologist, for her to be checked as well.She said she would like to cover all the bases...and I agree.

Friday morning was our visit to the Cardiologist with Dr J, He and his resident were fabulous with us. They explained very well and checked Presley out. Both listened and agreed they did indeed hear something. They sent us for an echocardiagram(we waited no more than 5 minutes to be called in-GREAT!) and within 25 minutes with results in our hands we were heading back to Dr J's office. He checked the results and indicated that she has 2 minor issues with her heart. 1 is pulmonary stenosis(very minor he indicated) and PDA(again minor). He indicated that nothing needed to be done surgically and that when she visited the dentist she would require antibitotics.
He indicated she should be seen again in 2 years...so we were- happy with that. He indicated she will live a very normal life and what he saw and heard many people have. He was very funny. I was asking questions about the PDA (patent ductus blah blah) and the resident was explaining to us what a duct was...when Dr J came into the room the resident indicated..I was explaining to them what a Duct is...Dr J replied...a bird with yellow feathers and goes quack quack. We all had a good laugh.The appointment was very calming and they made us feel very comfortable about her situation. I really appreciated their approach.


Monday morning is her key visit which I am very anxious about...her visit to the Shriner's for her hips and legs. I pray that they will be able to help her with her mobility. She can run and walk but she asks to be picked up all the time and is in much pain.
Keeping my fingers crossed that it is indeed Dislocated hips and that Dr. Hamdy can work some miracles for our little brat.

As for Presley she is starting to feel comfortable and I am happy to see it. She is running around and so happy to play with the kids. I think she is fitting in quite nicely. She has a great funny characher. She loves to laugh and is already trying to push the limit already. She is definitely your typical 3.5 year old..tantrums and all. We love her so much and are so happy she is part of our family-at long last!!

Hugs,
I will post pics this weekend! I promise..

Karen