Hi all,
In case anyone is checking in here for an update..I have decided to close this one and have created a family blog...so you can check in and see how all my kids are doing...
Thanks for joining us on our journey to Presley...
Here is the new blog: http://wright-mauraischronicles.blogspot.com/
Thanks,
Karen
Tuesday, October 23, 2007
Saturday, October 13, 2007
Well Fall is finally here and Presley has been home 6 months!!
Hi all,
I thought I would update the blog as many of you have asked for updated pictures etc.
Here is our Presley ...this picture was taken today..Oct 13th, 2007 outside of our place. Getting ready for Halloween!!
Presley is doing great...she started fulltime daycare in September as I started back to work after Labour Day. The summer just flew by. Can you beleive already it is October 13th. Today we celebrated Madison's 10th birthday.
Here she is...she recently ha
d her hair cut...she took about 8 inches off.Happy Birthday Sweetheart. Her birthday is actually on Monday.
d her hair cut...she took about 8 inches off.Happy Birthday Sweetheart. Her birthday is actually on Monday.
Here is Jagger, Jaden and Presley having fun!
Presley had her baptism last weekend (Oct 6th, 2007)and here is a picture of our angel wearing the Silk dress that Daddy bought her from the silk factory in Beijing.
Presley has been home 7 months in 3 days. The time has just zoomed by and Presley is growing tall and is speaking very well. She is a smart little girl and is very sociable and very lovable. Again we have been so blessed to have her in our family.
I will write more soon.
Karen
We had a lot of fun this summer...so I thought I would post some of our pictures..
Friday, May 11, 2007
Sorry for taking so long...finally an update
Hi all,
Well today is my last day and I am back to work on Monday. I will be taking more time with the kids and James mid July until the end of August and that will take up the remaining weeks we have for parental leave. The 8 weeks I have been off and since Presley has been home has passed so quickly. We have been very busy and seems like we didn't have one day to relax around the house and do nothing...I am not sure if that is possible anymore.
James and I have spent a lot of time with Presley and most days we kept Jaden home from daycare sothey could play together. Jaden still is having a few issues with losing her baby spot in our family but she is getting better. I know it takes awhile. I have seen it with Kennedy.
We have been busy with all the doctors, physio therapists, occupational therapist. pediatrician, neurologist, physchologists etc. Who knew there would be a team that huge to help with our angel. She has done amazingly well and we are madly in love with her. She is a very happy, spirited big girl. She is really starting to come out of her shell now and I see such a change in her. She is laughing a lot more and fits right in with our family. She is talking quite a bit and each day adds new words to her repetoire.
We see Dr Benaroch at the CP Clinic at the Shriner's at the beginning of June and we will see from that meeting if and what could be done to help Presley with her right leg. Her left leg from what the physio therapists are saying is very good. They feel the resistance only in her right one.
We are going to therapy (PT) every 2 weeks and OT they were very impressed with her and they only need to see her once in awhile to make sure she is progressing as she should.
Presley is also tongue tied and we had an appointment this week and they indicated with all she has been through since being home the surgery can wait. The oral surgeon indicated that it is not bad compared to others he has seen so he felt waiting 4 months would not make much of a difference. We want to give her the best chance with her language/speech so we want to proceed.
Presley will be starting daycare next week for 2 half days...James will spend the morning at daycare with her to make sure she is comfortable..I think daycare and all the kids will be great for her as from what we see at home Presley doesn't know how to play really. I don't think she was with many children her age.
I will post some new pics soon...and promise to update this site more often.
Hugs,
Karen
Monday, April 02, 2007
Finally an update-April 2, 2007
Hi all,
Life is finally starting to settle down again and finally I can sit and update the blog.
Presley had her teeth repaired on Thursday at 12:00pm. They called us early as they had a cancellation. Yeah! We headed out and what a great place. It is called Rockland MD. They put her out using general anasthesia..she was out in 2 seconds. The dentist then proceeded to take xrays and came out to talk with us about his plan of action. He said he would be possibly be doing a root canal or two, fillings and building of some teeth. The whole procedure was to take 1 hour. Well 2 hours later finally the dentist comes out and indicates that Presley's teeth were much more work that he had originally thought. What he thought were bad cavities turned out to be "mush". He said her teeth were in horrible shape and so 8 root canals and 8 crowns later, fillings on the remaining teeth from the canine and back..our poor angel arrived on a bed looking like she had had a fight with Rocky Balboa...her face was very swollen and her lips well...looks like she had plenty of Botox in them...Mick Jagger step aside....about 10 minutes later she started waking up and she looked at me and James, opened her mouth to show us the big job that was done. I felt so bad for putting her through all of this so soon since coming home..but that is something that had to be done. She needed to be finished with the pain in the mouth and needed to eat.
The dentist indicated she must have been in very bad pain for a long time. Gladly he said...she would be tender for a day or two and then her pain would be no more. That was what I wanted to hear. Music to my ears!
We took her home and within a few hours she was doing well and wanted to get up and play. She was a real trooper. She slept well that night and the following day she was back to normal.
Friday was the Jagger's day to get his cast off...I brought him to the hospital and they sawed it off..xrays were re-taken and gladly everything healed and he is cast free.
Presley visited the neurologist last week as well and Dr S immediately said upon seeing her walk that she has mild CP. He did some tests with her hands and her legs and he indicated that her CP has affected her lower limbs. The right leg is more affected than the left. We will be having a CAT scan and a nerve reflex test May 2nd. For now we are starting physical and occupational therapy April 24th. We will do that every 2 weeks. We have started on stretching exercises which Daddy does with her every morning and night. It has become their little routine already.
Presley has a lot of pain in her right leg when she stands or walks. She cries in pain and this is something I will have to speak to the doctors about as I hate seeing her like that. There has to be something that can be done. There are things that can be done but starting with physical therapy is what they like to suggest. Hopefully this will help her. She bends her leg and sometimes resorts to crawling to get to where she wants to go. It hurts me so much to see her like that.
She is a very little brave girl and we are so happy that she is a part of our family. I have a lot of reading and learning to do about CP and how I can help her to the best of my ability.
Saturday afternoon was our annual visit to the Sugar Shack "Cabane a Sucre" and it was a nice day out. The weather was wonderful and it was Presley's first visit with many of our friends. I was worried that all the people and the music etc would be too much for her. She took is very well and seemed to enjoy her day. I cannot imagine what must be going through her head...from a small farm village one day to our loud family and all our adventures. Thank you Auntie Denise for the great cowboy hat....and Auntie Doris and Uncle Dan for the beautiful purple outfit.
Today was our first day with nothing planned. It was nice to just go here and there and not be sitting in a doctor's office. I saw a much happier little girl today. She is beautiful with her little dimples and she is quite the little charachter. She is bonding with her sisters and brothers and everyone is getting along very well.
We need to have vaccines and her blood work done soon but I wanted to take a few days off and just stick close to home and just be together.
Thanks to all of you for your thoughts and prayers...we appreciate them all!
Presley kisses you all !!!
Hugs,
Karen
Life is finally starting to settle down again and finally I can sit and update the blog.
Presley had her teeth repaired on Thursday at 12:00pm. They called us early as they had a cancellation. Yeah! We headed out and what a great place. It is called Rockland MD. They put her out using general anasthesia..she was out in 2 seconds. The dentist then proceeded to take xrays and came out to talk with us about his plan of action. He said he would be possibly be doing a root canal or two, fillings and building of some teeth. The whole procedure was to take 1 hour. Well 2 hours later finally the dentist comes out and indicates that Presley's teeth were much more work that he had originally thought. What he thought were bad cavities turned out to be "mush". He said her teeth were in horrible shape and so 8 root canals and 8 crowns later, fillings on the remaining teeth from the canine and back..our poor angel arrived on a bed looking like she had had a fight with Rocky Balboa...her face was very swollen and her lips well...looks like she had plenty of Botox in them...Mick Jagger step aside....about 10 minutes later she started waking up and she looked at me and James, opened her mouth to show us the big job that was done. I felt so bad for putting her through all of this so soon since coming home..but that is something that had to be done. She needed to be finished with the pain in the mouth and needed to eat.
The dentist indicated she must have been in very bad pain for a long time. Gladly he said...she would be tender for a day or two and then her pain would be no more. That was what I wanted to hear. Music to my ears!
We took her home and within a few hours she was doing well and wanted to get up and play. She was a real trooper. She slept well that night and the following day she was back to normal.
Friday was the Jagger's day to get his cast off...I brought him to the hospital and they sawed it off..xrays were re-taken and gladly everything healed and he is cast free.
Presley visited the neurologist last week as well and Dr S immediately said upon seeing her walk that she has mild CP. He did some tests with her hands and her legs and he indicated that her CP has affected her lower limbs. The right leg is more affected than the left. We will be having a CAT scan and a nerve reflex test May 2nd. For now we are starting physical and occupational therapy April 24th. We will do that every 2 weeks. We have started on stretching exercises which Daddy does with her every morning and night. It has become their little routine already.
Presley has a lot of pain in her right leg when she stands or walks. She cries in pain and this is something I will have to speak to the doctors about as I hate seeing her like that. There has to be something that can be done. There are things that can be done but starting with physical therapy is what they like to suggest. Hopefully this will help her. She bends her leg and sometimes resorts to crawling to get to where she wants to go. It hurts me so much to see her like that.
She is a very little brave girl and we are so happy that she is a part of our family. I have a lot of reading and learning to do about CP and how I can help her to the best of my ability.
Saturday afternoon was our annual visit to the Sugar Shack "Cabane a Sucre" and it was a nice day out. The weather was wonderful and it was Presley's first visit with many of our friends. I was worried that all the people and the music etc would be too much for her. She took is very well and seemed to enjoy her day. I cannot imagine what must be going through her head...from a small farm village one day to our loud family and all our adventures. Thank you Auntie Denise for the great cowboy hat....and Auntie Doris and Uncle Dan for the beautiful purple outfit.
Today was our first day with nothing planned. It was nice to just go here and there and not be sitting in a doctor's office. I saw a much happier little girl today. She is beautiful with her little dimples and she is quite the little charachter. She is bonding with her sisters and brothers and everyone is getting along very well.
We need to have vaccines and her blood work done soon but I wanted to take a few days off and just stick close to home and just be together.
Thanks to all of you for your thoughts and prayers...we appreciate them all!
Presley kisses you all !!!
Hugs,
Karen
Monday, March 26, 2007
Presley Update - March 26
Hi all,
Presley is doing very well. We have dragged her from doctor to doctor since she has come home and she is such a brave little girl. Today we visited the Shriner's Hospital to see about her dislocated hips. We arrived at 9:15am and left at 3:30pm. It was quite a long day. Presley was checked by Dr. H and she was sent for xrays of her hips as he didn't feel any dislocation in her hips. The xrays came back and her hips are not dislocated afterall. We asked then why is she walking like that and why does she appear to be in pain. He did not have a good bedside manner and was very busy with a room full of other patients. He wrote down a couple of words and said we should see physio therapy and they would help us with some exercises as her muscles are aspastic on her right side. He also indicated we should make an appointment with a pediatric neurologist. We already have a referral. He wants to see her back in a year.
We headed to physio but they were closed for lunch..so we headed to the caf for some tasty chicken and then headed back down. We finally were able to see someone at 2pm. A wonderful lady sat with us and told us what the doctor had written down and passed along to her. She indicated that she beleives Presley has cerebral palsy that has affected the right side of her body. She did a few games and observed Presley and indicated to us that she beleived it was a mild case and that from what she could see her hand was not bad but that her leg needed exercises as her muscles are tight. We sat and watched the therapist as she did the exercises on Presley's leg and foot. All through this she was laughing and giggling.
James and I are scouring the internet tonight and reading about CP and what it is and hopefully learn everything we can in the next months ahead...it is scary thinking about the potential big challenges our little girl might face in the future...but as I said to James as we drove out of the parking lot in the hospital...she is our daughter and we will do whatever it takes to help her ..
As soon as I got home I called the neurologist to make an appt and I was so lucky as I was told the wait for neurology is about a year...they had a cancellation and we have an appt for 11:15am tomorrow morning.
So hopefully tomorrow we will have more information and perhaps more answers. It has been a big day for us. I am pooped and need some sleep!
Until next time,
Karen
Presley is doing very well. We have dragged her from doctor to doctor since she has come home and she is such a brave little girl. Today we visited the Shriner's Hospital to see about her dislocated hips. We arrived at 9:15am and left at 3:30pm. It was quite a long day. Presley was checked by Dr. H and she was sent for xrays of her hips as he didn't feel any dislocation in her hips. The xrays came back and her hips are not dislocated afterall. We asked then why is she walking like that and why does she appear to be in pain. He did not have a good bedside manner and was very busy with a room full of other patients. He wrote down a couple of words and said we should see physio therapy and they would help us with some exercises as her muscles are aspastic on her right side. He also indicated we should make an appointment with a pediatric neurologist. We already have a referral. He wants to see her back in a year.
We headed to physio but they were closed for lunch..so we headed to the caf for some tasty chicken and then headed back down. We finally were able to see someone at 2pm. A wonderful lady sat with us and told us what the doctor had written down and passed along to her. She indicated that she beleives Presley has cerebral palsy that has affected the right side of her body. She did a few games and observed Presley and indicated to us that she beleived it was a mild case and that from what she could see her hand was not bad but that her leg needed exercises as her muscles are tight. We sat and watched the therapist as she did the exercises on Presley's leg and foot. All through this she was laughing and giggling.
James and I are scouring the internet tonight and reading about CP and what it is and hopefully learn everything we can in the next months ahead...it is scary thinking about the potential big challenges our little girl might face in the future...but as I said to James as we drove out of the parking lot in the hospital...she is our daughter and we will do whatever it takes to help her ..
As soon as I got home I called the neurologist to make an appt and I was so lucky as I was told the wait for neurology is about a year...they had a cancellation and we have an appt for 11:15am tomorrow morning.
So hopefully tomorrow we will have more information and perhaps more answers. It has been a big day for us. I am pooped and need some sleep!
Until next time,
Karen
Pictures of our Presley-Home 1 week
What a great site don't you think? Sisters getting ready for the day. Madison is so in love with Presley. Kennedy is being a wonderful big sister and well Jaden..she has her nose out of joint a little but that was to be expected.
Friday, March 23, 2007
Friday is here...and our update
Hi all,
Well today is Friday and James and Presley have been home almost a week. In a week things have changed quite a bit. Everyone is now back on our time zone which is a big bonus and Presley is really starting to warm up to life in our family. It is very nice to see. Her sisters Kennedy and Madison are madly in love with her and help her with anything she needs. With her hips this causes problems with her walking up and down stairs and they are still keen on helping her up and down and taking her to the bathroom or whatever else the Princess wants to do. Hmmm I wonder how long that will last. Colby is doing great with his little sister and is very good with her. Jagger will help her if he is needed to help and once in awhile I catch him showing her his favority gameboy or giving her a kiss on her head.
Just now she was in the livingroom and singing me some Chinese songs she knows. She was too cute.
I have not had much time for anything these days and have not taken many photos as most of the days from 8am-3pm we have been out at the hospital, pediatrician or where ever and the days have flown by. By the time the kids are in bed..I don't feel like doing very much. I will try and get some new pics this weekend as it is James birthday and we are having a BBQ tomorrow to celebrate his day.
So here is her latest update:
Thursday morning we headed to the Children's hospital for her appointment with Dr K for her eyes. He indicated that she had a micro strabismus in her eye and that with her bridge being wide it appears that her eyes turn in more than they really do. He checked to see if she needed glasses and he indicated he beleives she needs nothing and that he hopes that she will grow out of it as he has seen with other children. He wants to see her back in 6 months to see how she is coming along. So good news there!
Thursday afternoon we visited her new pediatrician, Dr K, who checked her all over. She gave me the list of the many blood tests to be done so we will work on that in a week or two. She indicated of course she needs to be checked by orthopedics and I advisd her the appointment was for Monday morning. She also gave us a referral for a neurologist, for her to be checked as well.She said she would like to cover all the bases...and I agree.
Friday morning was our visit to the Cardiologist with Dr J, He and his resident were fabulous with us. They explained very well and checked Presley out. Both listened and agreed they did indeed hear something. They sent us for an echocardiagram(we waited no more than 5 minutes to be called in-GREAT!) and within 25 minutes with results in our hands we were heading back to Dr J's office. He checked the results and indicated that she has 2 minor issues with her heart. 1 is pulmonary stenosis(very minor he indicated) and PDA(again minor). He indicated that nothing needed to be done surgically and that when she visited the dentist she would require antibitotics.
He indicated she should be seen again in 2 years...so we were- happy with that. He indicated she will live a very normal life and what he saw and heard many people have. He was very funny. I was asking questions about the PDA (patent ductus blah blah) and the resident was explaining to us what a duct was...when Dr J came into the room the resident indicated..I was explaining to them what a Duct is...Dr J replied...a bird with yellow feathers and goes quack quack. We all had a good laugh.The appointment was very calming and they made us feel very comfortable about her situation. I really appreciated their approach.
Monday morning is her key visit which I am very anxious about...her visit to the Shriner's for her hips and legs. I pray that they will be able to help her with her mobility. She can run and walk but she asks to be picked up all the time and is in much pain.
Keeping my fingers crossed that it is indeed Dislocated hips and that Dr. Hamdy can work some miracles for our little brat.
As for Presley she is starting to feel comfortable and I am happy to see it. She is running around and so happy to play with the kids. I think she is fitting in quite nicely. She has a great funny characher. She loves to laugh and is already trying to push the limit already. She is definitely your typical 3.5 year old..tantrums and all. We love her so much and are so happy she is part of our family-at long last!!
Hugs,
I will post pics this weekend! I promise..
Karen
Well today is Friday and James and Presley have been home almost a week. In a week things have changed quite a bit. Everyone is now back on our time zone which is a big bonus and Presley is really starting to warm up to life in our family. It is very nice to see. Her sisters Kennedy and Madison are madly in love with her and help her with anything she needs. With her hips this causes problems with her walking up and down stairs and they are still keen on helping her up and down and taking her to the bathroom or whatever else the Princess wants to do. Hmmm I wonder how long that will last. Colby is doing great with his little sister and is very good with her. Jagger will help her if he is needed to help and once in awhile I catch him showing her his favority gameboy or giving her a kiss on her head.
Just now she was in the livingroom and singing me some Chinese songs she knows. She was too cute.
I have not had much time for anything these days and have not taken many photos as most of the days from 8am-3pm we have been out at the hospital, pediatrician or where ever and the days have flown by. By the time the kids are in bed..I don't feel like doing very much. I will try and get some new pics this weekend as it is James birthday and we are having a BBQ tomorrow to celebrate his day.
So here is her latest update:
Thursday morning we headed to the Children's hospital for her appointment with Dr K for her eyes. He indicated that she had a micro strabismus in her eye and that with her bridge being wide it appears that her eyes turn in more than they really do. He checked to see if she needed glasses and he indicated he beleives she needs nothing and that he hopes that she will grow out of it as he has seen with other children. He wants to see her back in 6 months to see how she is coming along. So good news there!
Thursday afternoon we visited her new pediatrician, Dr K, who checked her all over. She gave me the list of the many blood tests to be done so we will work on that in a week or two. She indicated of course she needs to be checked by orthopedics and I advisd her the appointment was for Monday morning. She also gave us a referral for a neurologist, for her to be checked as well.She said she would like to cover all the bases...and I agree.
Friday morning was our visit to the Cardiologist with Dr J, He and his resident were fabulous with us. They explained very well and checked Presley out. Both listened and agreed they did indeed hear something. They sent us for an echocardiagram(we waited no more than 5 minutes to be called in-GREAT!) and within 25 minutes with results in our hands we were heading back to Dr J's office. He checked the results and indicated that she has 2 minor issues with her heart. 1 is pulmonary stenosis(very minor he indicated) and PDA(again minor). He indicated that nothing needed to be done surgically and that when she visited the dentist she would require antibitotics.
He indicated she should be seen again in 2 years...so we were- happy with that. He indicated she will live a very normal life and what he saw and heard many people have. He was very funny. I was asking questions about the PDA (patent ductus blah blah) and the resident was explaining to us what a duct was...when Dr J came into the room the resident indicated..I was explaining to them what a Duct is...Dr J replied...a bird with yellow feathers and goes quack quack. We all had a good laugh.The appointment was very calming and they made us feel very comfortable about her situation. I really appreciated their approach.
Monday morning is her key visit which I am very anxious about...her visit to the Shriner's for her hips and legs. I pray that they will be able to help her with her mobility. She can run and walk but she asks to be picked up all the time and is in much pain.
Keeping my fingers crossed that it is indeed Dislocated hips and that Dr. Hamdy can work some miracles for our little brat.
As for Presley she is starting to feel comfortable and I am happy to see it. She is running around and so happy to play with the kids. I think she is fitting in quite nicely. She has a great funny characher. She loves to laugh and is already trying to push the limit already. She is definitely your typical 3.5 year old..tantrums and all. We love her so much and are so happy she is part of our family-at long last!!
Hugs,
I will post pics this weekend! I promise..
Karen
Tuesday, March 20, 2007
Presley Update-Tuesday, March 20,2007
Hi all,
Thanks so much for the encouraging emails..we having been running for the last 2 days.
I just wanted to send an update. Monday we went and received her temporary medicare card. DONE! This thing will be smoking by the end of next week..LOL
Today we happily had her visit with a pediatric dentist at a clinic in Anjou..the Dentist was wonderful(Thank you Karen Nolan for his name-Dr Dirsken(SP???). He lied Presley down on the chair and said he only needed 10 seconds to get an idea what the issues were. He indicated that Presley most likely had been layed down with bottles of milk and sugar and this constant coating of milk and sugar and lack of brushing of her teeth just ate them away. He also indicated that this is routine for his office and that he treated about 25-30 kids a week. I was shocked. Kids here in Quebec have teeth like Presley....WOW!!!
They treated us so well there. I was amazed. She will require to be put under anestesia(sp??) and will have all the work done that is required. The Doc indicated that when she is put to sleep we will be in the room with her..and once she is sleeping we will go and wait for about an hour while they take full xrays, do their prognosis(final one) and do all the work required. So....we have been so lucky and we have an appointment next Thursday at 3:15pm for the procedure. So her teeth will hurt no more after that. The Doc indicated normally a few days afterward and they should be great. He told me you will see a huge difference in her, eat more, be happy and grow like a weed as she will then be able to eat whatever she likes as she will be able to chew. He said she must be in a lot of pain as the cavities especially in the 8 teeth are very bad and will probably require crowns. He indicated that her teeth are full of cavities ...poor angel. He indicated that she will be prone to cavities in her baby teeth and that lots of brushing, flossing and 6 month cleanings will have to be followed...but he said I have a feeling that won't be an issue for you guys..and he is right!
She is sleeping the whole night and today I saw a much more alert, happy little girl. She is still crying with the pain in her legs and her teeth...and I see she is having problems with her vision...but all of these things will shortly be looked at and hopefully have them corrected soon.
By another miracle and some wonderful people I know...Presley has an appointment at the Children's for her eyes this Thursday. Her Doctor normally does not do clinics on Thursday but decided to do one this week...and we have an appointment for 9:15am. I am so happy about that.
I think she will need glasses for sure..but I want her to be able to see well and not have to struggle with that as well. So much struggle for such a young sweetheart.
Tomorrw she has Dr Kooglemass her pediatrician for her overall checkup.
Friday she has Dr Jutras her cardiologist at the Children's-so hopefully we will know how her heart is doing following that meeting.
Monday next week she meets Dr Hamdy at the Shriner's and will have her legs xrayed and checked and we will see where to take it from there.
Of course I will keep you updated.
She touches me on my hand about 100 times a day and looks at me so sweetly saying "Mamma ya"..I love her so much already..she is very precious to me.
She is getting along so well with the kids and is so happy when they come home from school. Yesterday they were playing with majhong pieces, building them up and knocking them down. She was clapping and had a huge smile on her face. It was soooo wonderful to see.
She is very caring and appears to be settling down and getting more comfortable with all of us.
She is quite a little charachter. She has fought against all the hardships she has had to endure for many years...but now she has Mama and Baba to help her finally get them out of the way.
She deserves anything and everything and we will do whatever it takes for her. Step by Step we will hold her hand and help her get better. Her Baba is madly in love with her..and I know it has only be a few days...but so is her Mama.
I am so happy she is home. She needed to come home so badly.
Hugs and thanks to you all once again.
Karen
Thanks so much for the encouraging emails..we having been running for the last 2 days.
I just wanted to send an update. Monday we went and received her temporary medicare card. DONE! This thing will be smoking by the end of next week..LOL
Today we happily had her visit with a pediatric dentist at a clinic in Anjou..the Dentist was wonderful(Thank you Karen Nolan for his name-Dr Dirsken(SP???). He lied Presley down on the chair and said he only needed 10 seconds to get an idea what the issues were. He indicated that Presley most likely had been layed down with bottles of milk and sugar and this constant coating of milk and sugar and lack of brushing of her teeth just ate them away. He also indicated that this is routine for his office and that he treated about 25-30 kids a week. I was shocked. Kids here in Quebec have teeth like Presley....WOW!!!
They treated us so well there. I was amazed. She will require to be put under anestesia(sp??) and will have all the work done that is required. The Doc indicated that when she is put to sleep we will be in the room with her..and once she is sleeping we will go and wait for about an hour while they take full xrays, do their prognosis(final one) and do all the work required. So....we have been so lucky and we have an appointment next Thursday at 3:15pm for the procedure. So her teeth will hurt no more after that. The Doc indicated normally a few days afterward and they should be great. He told me you will see a huge difference in her, eat more, be happy and grow like a weed as she will then be able to eat whatever she likes as she will be able to chew. He said she must be in a lot of pain as the cavities especially in the 8 teeth are very bad and will probably require crowns. He indicated that her teeth are full of cavities ...poor angel. He indicated that she will be prone to cavities in her baby teeth and that lots of brushing, flossing and 6 month cleanings will have to be followed...but he said I have a feeling that won't be an issue for you guys..and he is right!
She is sleeping the whole night and today I saw a much more alert, happy little girl. She is still crying with the pain in her legs and her teeth...and I see she is having problems with her vision...but all of these things will shortly be looked at and hopefully have them corrected soon.
By another miracle and some wonderful people I know...Presley has an appointment at the Children's for her eyes this Thursday. Her Doctor normally does not do clinics on Thursday but decided to do one this week...and we have an appointment for 9:15am. I am so happy about that.
I think she will need glasses for sure..but I want her to be able to see well and not have to struggle with that as well. So much struggle for such a young sweetheart.
Tomorrw she has Dr Kooglemass her pediatrician for her overall checkup.
Friday she has Dr Jutras her cardiologist at the Children's-so hopefully we will know how her heart is doing following that meeting.
Monday next week she meets Dr Hamdy at the Shriner's and will have her legs xrayed and checked and we will see where to take it from there.
Of course I will keep you updated.
She touches me on my hand about 100 times a day and looks at me so sweetly saying "Mamma ya"..I love her so much already..she is very precious to me.
She is getting along so well with the kids and is so happy when they come home from school. Yesterday they were playing with majhong pieces, building them up and knocking them down. She was clapping and had a huge smile on her face. It was soooo wonderful to see.
She is very caring and appears to be settling down and getting more comfortable with all of us.
She is quite a little charachter. She has fought against all the hardships she has had to endure for many years...but now she has Mama and Baba to help her finally get them out of the way.
She deserves anything and everything and we will do whatever it takes for her. Step by Step we will hold her hand and help her get better. Her Baba is madly in love with her..and I know it has only be a few days...but so is her Mama.
I am so happy she is home. She needed to come home so badly.
Hugs and thanks to you all once again.
Karen
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